Health Issues in Women with Multiple Sclerosis by Maria K. Houtchens & A. Dessa Sadovnick

Author:Maria K. Houtchens & A. Dessa Sadovnick
Language: eng
Format: epub
Publisher: Springer Vienna, Vienna

6.3 Keeping Children Informed

Limited knowledge and understanding of MS is associated with poor adjustment in children [36, 37]. It is important to provide children with information about MS that is tailored to their developmental level. Lack of such information could lead to misconceptions in children, with some children believing that their own behavior or other people’s behavior caused their parent’s illness [38, 39]. Young children, in particular, appear to have a need for information that is often not met [38]. Children need good information and simple explanations regarding the etiology of MS and also need to be reassured that their own risk for developing MS is minimal [38]. Children who are unaware of their parent’s illness may display high levels of anxiety and distress as they witness family tension without being aware of its source [36]. A surprising aspect of parent-child relationships is the research finding that educated mothers are less likely to provide information regarding their illness to their children [36].

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